ACCESS PD

We understand the challenges in Parkinson’s Disease research

Parkinson’s disease research is being held back by fragmented data and limited access to representative patient populations. Despite the complexity and variability of the condition, studies are often slow to recruit and rely on data from a narrow subset of patients linked to specialist centres. This lack of scale, diversity, and longitudinal insight restricts our understanding of disease progression, sub-types, and treatment response - ultimately slowing the development

ACCESS PD

uMed’s Access Parkinson’s Disease cohort

AccessPD addresses these challenges through a next-generation, remote Parkinson’s disease registry. Using electronic health record data, patients across the US and UK with a confirmed diagnosis are identified and invited to take. With consent, AccessPD links routine clinical data with ongoing patient-reported outcomes and genetic or biomarker data collected from home, creating a rich, longitudinal resource that enables inclusive research, patient stratification, and efficient recruitment for studies and clinical trials.

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What is AccessPD

A next generation research platform.

High-touch patient communication is delivered by dedicated specialist nurse teams, ensuring participants receive personalised support and clear guidance throughout their involvement - ensuring excellent data completion, and without adding any operational or administrative burden to the patient’s existing healthcare providers.

Patient Website

Advisory Board

Anchored by leading scientific experts

Prof. Alastair Noyce

Chief Investigator

Professor at the University of Cambridge, Director of the NIHR Clinical research Facility in the VPD Heart & Lung Research Institute and an Honorary Consultant in Royal Papworth NHS Trust.

Security & Privacy

Setting a new standard for privacy & safeguarding

AccessPD is run and maintained by Cohort Science, a clinical research organization

HIPAA compliant data management, IRB-approved patient consenting and patient-centric study design